Sick to the back teeth of patient blaming

I have not written in my blog for a very long time. Today I am compelled to do so because I am sick to the back teeth of patient blaming by professionals.

My entire experience of the healthcare system has been predominantly with psychiatry and the mental health sector. The minute I set foot inside that sector the blaming started. In fact it started before that with the GPs. Why was I in my bed, why wasn’t I getting up to help my mother? Then the mental health sector. I was irresponsible, immature, too dependent on my mother, didn’t wear high heels, didn’t want to look like a woman, was attention seeking (overdoses), they even laughed at my poor appetite. What they did not notice was that I had rapidly become very unwell after being prescribed a benzo by a neurologist. My appetite was suppressed, I lost quarter of my body weight within a few months, I didn’t look like a woman, some people thought I was a boy! I felt like absolute shit physically, mentally, psychologically, emotionally and yes I had tried to kill myself despite never having thought of suicide prior to consuming benzos. I didn’t feel like getting dressed up in the latest fashions, with my high heels on to attend a psychiatric hospital just so I could look like a sexy woman! I can just imagine what they might have said if I had, then they would have said there wasn’t much wrong with me!

And the blaming did not end there. They didn’t tell me the drugs caused aggression so when I became aggressive of course I was blamed for that too, not a word was said about the cause. I was restrained because they had prescribed these shit drugs which cause aggression. I was blamed because they had prescribed shit drugs that cause constant suicidal thoughts, impulses and suicide attempts.

One psychiatrist started to probe my childhood memories, suddenly very painful memories (not sexual abuse) resurfaced, I started to hallucinate, I was terrified and started to scream on a hospital ward. A meeting was convened to discuss my unaceptable behaviour, suddenly I was moved from one hospital to another with no explanation. I walked out of the ward and attempted suicide again and this time it was nearly fatal. I went back into the ward and was told I might spend the rest of my life in a psych hospital, I was to be sectioned and given ECT. My husband was consulted and he said a flat “no” to being sectioned and I said a flat “no” to ECT. I knew full well I had no need of ECT, I knew why I had just tried to kill myself, the psychiatrist never asked. However, he never again consulted with me alone. He knew!!

So coming to today I see the pattern of patient blaming time and time again on social media. Injured patients are trolls as they desperately try to get their voices heard to prevent harm to others. Injured patients have a victim mentality and perpetuate their own suffering. Injured patients are so stupid and irrational they think that because one person (themselves) has been harmed they suddenly want psychiatry and all psych treatments abolished. Harmed patients generalise form their own personal experience, well of course we do because of the hundreds and thousands of other harmed patients that we know about, goodness knows how many there must be in total. Again we are seen as irrational. I have been labelled a liar, a murderer and a criminal and all by Twitter psychiatrists.

Who is the crazy one here? It most definitely is not me.

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Prescribed harm can be a life sentence

For me prescribed harm has indeed been a life sentence. Since the age of 20 I have not enjoyed a single day of normal life. No one should have to serve a life sentence just because they decided to visit a doctor. I do not accept that pharmaceutical companies have the right to bring drugs to market or that doctors are trained and paid to prescribe them to millions of trusting patients with very limited knowledge of the harm those drugs can cause. My life has more value than this, I do not deserve to have this type of harm inflicted upon me by any medical doctor. It was bad enough being prescribed a benzodiazepine in 1975 with no warnings given to me about the risks of drug dependence and severe withdrawal effects, it was even worse being prescribed antidepressants which made the situation considerably worse and again with no informed consent. I have every right to be angry. And so has every other patient whose life has been blighted by pharmaceutical products not adequately tested prior to being launched onto the general population.

I did not choose to go to a street drug dealer to get a drug which would ultimately ruin my life. I did not choose to smoke and cause serious harm to my health. I did not drink alcohol to excess. We were all warned about the dangers of those particular activities, we were not warned that it was just as dangerous to visit the local GP. Perhaps there are many people much wiser than me, but prescribed drugs was not a subject that I ever heard anyone discuss as I was growing up. My family was generally healthy and a visit to the doctor a rare event. My parents obviously had no idea that the drugs I was consuming were such awful drugs and harmful to health. Clearly my doctors thought it was a wise idea to prescribe them to me and to keep prescribing year after year. They will say I agreed to take them. Of course I agreed to the initial prescription but when you find you are dependent on them your life choices vanish in a flash. What to do? Risk everything trying to get off them, risk losing job and home or keep on taking them? No one is going to come along and magically pay the bills. I did not want to be unemployed or dependent on welfare benefits. I did that for a few years intermittently but I was always trying to find the next job and I had many of them as I tried to battle my way to work against the disabling effects of these prescribed drugs. Some jobs lasted a few weeks, some a few months, others a year or more. It is absolutely galling that doctor after doctor said nothing about drug dependence or gradual tapering, it is even more galling that they actually thought antidepressants were keeping me stable, that old chestnut about the chemical imbalance and risk of relapse if drugs are stopped. What a pile of nonsense it was.

Psychiatrists thought I was too dependent on other people. Really? Were they going to work every day like a drugged zombie? How would they have fared if they had tried? They wouldn’t have lasted long in the job of psychiatrist, I can guarantee that. How dare they sit in judgement over me when they aren’t even aware of their own massive ignorance. They don’t even know the harms these drugs can cause. They have filled our heads with nonsense about chemical imbalances and drugs to fix this problem. What chemical imbalance? They never test us for anything. They have no idea what is wrong with us.

I respect a doctor who is blunt and honest. Dr Des Spence, Glasgow GP, took an interest in the fact that I and many other harmed patients had gone to such effort to contribute to a petition to the Scottish Parliament. Anyone who cares to read the multiple accounts of harm submitted by patients will soon understand just how terrible these drugs can be. Two of the young women who submitted subsequently died by suicide. Neither of them deserved that, their suffering was horrific and unsustainable.

https://archive2021.parliament.scot/gettinginvolved/Petitions/PE01651

Dr Spence wrote in the BJGP:

“In any other industry there would be howls for a public inquiry, a criminal investigation, and corporate manslaughter charges. The irony is there is a whole criminal justice system seeking to control illegal drugs with thousands of the poor imprisoned for decades for involvement in the drug trade. Yet, the professional architects of this medical mayhem walk away with their reputations intact and with bags of Pharma cash. I struggle to put into words the sense of shame this has brought our profession. It is a disgrace, a scandal, and the biggest public health issue of our time, an iatrogenic infection harming millions. What is happening is wrong and wholly preventable. There is a need for a public inquiry and an urgent need to stem the relentless rise of dependence-forming medications in the UK.”

https://bjgp.org/content/67/661/363

Will there ever be a public apology to all the patients like me whose lives have been blighted? I very much doubt it. Will there ever be any compensation? We know what happened with the class action on benzos in the UK, it was thrown out and the victims did not get a penny. Perhaps a class action on SSRI antidepressants will have a better chance of success. There has to be severe penalties for those who cause widespread harm, death and disability in the patient population.

Don’t tell me antidepressants “work” or “save lives”, that is of little interest to me, what matters most to me is that all of us who have been harmed see some sort of justice. I won’t get it for myself but I hope others can fight to get it for themselves.

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Campaigning about prescribed harm

Thank you to James Davies for mentioning my name during his interview.

https://www.bps.org.uk/psychologist/medical-model-has-presided-over-four-decades-flat-lining-outcomes

It is interesting looking back on the years since I started to campaign. It was very depressing to see how much animosity there was towards those of us who wanted to highlight the widespread harm being caused by prescribed drugs of dependence. I guess we had expected the medical profession and its members to be receptive to accounts of harm and keen to prevent this type of harm. That was not what happened. The narrative was that antidepressants were “good” drugs compared to benzodiazepines, that antidepressants were “safe and effective” (whatever that is supposed to mean), that any criticism of them was “pill-shaming”, “stigmatising mental health meds”, “stigmatising mental illness” and so on and so forth. The same reaction came from politicians and Government ministers, primed no doubt by senior psychiatrists. Even my own MP came out with this crap when quoted in the press, after I had communicated frequently with her and had visited her surgery in person for a face to face conversation.

An information gathering exercise by the BMA and the publishing of their report on prescribed drug dependence was a first step in gaining recognition of the problems. It was heartening to see the call by the BMA for a national helpline and specialist services across the UK. Of course these have never materialised. The review by Public Health England was another step. Changes in NICE guidelines and new guidance from RCPsych another. There have been many steps along the way. The work of CEP has been a vital component of the progress that has been made.

However, let’s notice the real problem here. Antidepressants, SSRIs, have been on the market for several decades. It is nearly a decade since I and other patients started to make our concerns known to the medical profession. In the meantime no doubt prescribing rates will still be rising and I can guarantee a large percentage of patients have not been given sufficient information to make an informed choice.

How much has really been achieved? Forgive my cynicism, but we still have a steady stream of Benzo-harmed patients coming online, looking for help, why are they not being helped by their prescribers? The drugs have been on the market since the 1960s. Doctors have had over half a century to understand the harm they can cause.

My own psychiatrist was no help whatsoever when I reported my own severe brain injury resulting from drug withdrawal. His response was that he could not be sure that was the cause of my injuries, he stated that there were no double-blinded, RCTs for him to access, I don’t think they conduct RCTs including patients like me who have consumed drugs for 40 years, not one class but two classes, and very few will have the nerve to get off these drugs after decades and with a limited number of years to look forward to. I consulted with another psychiatrist who thought it was good I was campaigning about the harms from benzos, note that he did not say it was good that I was campaigning about the harms from antidepressants, indeed when I pointed out that class of drugs was causing just as much harm, he disagreed. The letter he wrote about me was not acceptable, I noted the way he had omitted my years on antidepressants and how much harm that would cause. I sent it back to him and asked him to change it. He did.

Was I exceptionally brave? Of course not. When the GP suggested trying to come off the benzo, I was terrified, completely and utterly terrified. I thought I would try a few reductions, fully expecting it to be a disaster, I would return to my normal dose and I would go back and report to the GP. What happened was that the taper was not particularly problematic, I carried on, didn’t think that it was too fast, and then all hell was let loose about 6 months after the end of my taper. I am not any braver than the next person, I just have to deal with what is, on a day to day basis, it is what I have had to do since the day I started taking benzos. Since that day my life has been a mess. Planning was never possible. No one should have to live like this because of a bloody drug, if I had known that the drug was the cause of my symptoms I would have stopped it within weeks of starting it, just like I have stopped nearly every drug I have ever been offered by a psychiatrist. I only stayed on antidepressants because I found one or two I could tolerate, not because they did me any good, if only I had known the real reason I was sick, I would never have started taking them. And of course I believed the nonsense about chemical imbalances or did I? I guess I could not understand why I was sick, why I could not recover, so I sort of accepted it, I didn’t have another rational explanation. I like to know what is wrong with me and why. Now I know.

I believe my problem likely started with a childhood accident, knocked unconscious and pinned across the legs by a massive gravestone. Add in bullying at school, academic pressure, emotional problems at home, loneliness living in a very rural area and jerking of the arms and legs emerged when I was a teenager. Benzos prescribed by neurology and the rest is history.

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The importance of speaking out

As a proud member of the prescribed harm community and a psychiatric survivor, I know better than most the importance of speaking out and not bowing to any bully who comes along who seeks to prevent that. There are plenty of them, look to see who they hang around with, or check their Twitter feed to see if they are just a fake. The profession of psychiatry has caused and continues to cause immense harm, that is why there is a psychiatric survivor movement and so many harmed patients. Psychiatry as a profession has colluded with the pharmaceutical companies and led the general public and patients to believe that a chemical imbalance in the brain is a cause of depression, the result of this has been widespread consumption of antidepressants, a class of drugs which does not perform particularly well in clinical trials. GPs have been taught to believe this and to communicate this information to their patients. Even in the past few months we have seen two GPs on national TV talking about a chemical imbalance and insulin for diabetes. It is not so long ago that we listened to Prof Clare Gerada talking in a similar manner in a podcast for the Royal College of Physicians. She is one of the most influential GPs in the UK and married to the psychiatrist, Prof Sir Simon Wessely. In 2011 she also downplayed protracted benzodiazepine withdrawal when speaking on national radio.

https://www.benzo.org.uk/chaheath.htm

The recent article by Moncrieff et al, published in Molecular Psychiatry, has been one of the most important developments to date, since I first started to campaign about the harms caused by antidepressants.

https://www.nature.com/articles/s41380-022-01661-0

Of course I was already fully aware that there is no scientific evidence to show that low serotonin causes depression. I have known this for some time but the knowledge came far too late for me, as I had already consumed SSRIs for many years. The most galling aspect of the reactions to this article, has been the numerous psychiatrists who yawned at the mention of the article, as they had known for many years there was no evidence. For me personally, this knowledge has been vital, allowing me to free myself from the shackles of antidepressants. For me drugs of dependence, antidepressants and benzodiazepines, have simply been chains around my ankles, preventing me from functioning as a normal human being, suppressing my emotions, causing cognitive impairment and chronic fatigue, not to mention the complete lack of any sexual feelings. Why did I even put up with it? I was not warned of the risks prior to initial prescribing, drug dependence is not easy to throw off, it can take years and for me it was necessary to hold down a job, pay the bills and keep a roof over my head. The other reason was the fact that psychiatrists had firmly planted in my mind that I needed these drugs, I had an illness called “depression”, and any attempt to come off the drugs would be ill-advised as they were keeping me stable. All this was in fact a pile of nonsense. I had no such illness, the drugs were doing nothing positive, only causing harm, and the only factor in keeping me stable was my own determination and bloody-mindedness, that I would never give up trying to make a life for myself despite all the odds against me.

It was only when I retired that I started to question this whole idea of my being depressed. Why would I be depressed, there was no reason to be depressed? It did not make sense. I wanted to travel, enjoy all this free time. Soon after I retired, I changed GP and then everything started to become clear. I came off the benzos on medical advice. As I progressed through protracted withdrawal (brain injury) it was obvious I had been suffering from brain damage and not depression. The antidepressants were the next to be cast aside, slowly tapering off them. I was so very sick mostly bedridden due to withdrawal. I obtained my medical notes and then it was obvious that Prof George Ashcroft had passed me to another psychiatrist because he too had realised I did not have the depressive illness he had thought I might have. Yet despite this I was not advised to come off antidepressants. It wasn’t even explained to me that there was very little likelihood that I had a depressive illness. Yet whenever I hit a difficult patch in my life, the suggestion was always let’s try another drug. The drugs were making me sick, no wonder I could not cope.

One of the worst aspects of this for me, is that every memory I have from the age of 20, is of my struggle to function, always feeling terribly unwell, it got worse as I got older. The amount of effort I had to put into getting a degree, holding down a job, studying for a Masters and PhD on top of full time work was huge, I was battling with brain damage. I only did 2/3 of the Masters, I already worked in research full time and would have gained nothing from doing the last module, primary research. I went to viva for PhD but my health really wasn’t up to it, I was being bullied at work and when advised I would have to rewrite my thesis, I decided enough was enough, much to my grave disappointment. A PhD would not have increased my earnings but I would have gained immense satisfaction from achieving that particular goal.

Psychiatrists are in denial regarding how much harm they cause, they will never accept it. They will accept that harm is caused by other psychiatrists, but will generally think they are the exception, that they are different, that they do not cause harm. I think they are wrong. I can guarantee not one of my psychiatrists was aware they were causing me harm, every single one of them caused me harm. Nothing that they did was right for me. Ah, but people will say you didn’t have a mental illness. Too bloody right I didn’t but my husband did or at least he certainly fitted a certain diagnostic category. And what did he say before he died? He said I don’t think the drugs ever helped me, after decades of agreeing to every drug, every drug switch, every drug increase or drug reduction, agreeing to ECT, always saying he thought it was helping, and what was the end result? His physical health ruined, his cognition ruined, his mental state the same.

I think it is very important to note that we were both compliant patients, accepting the advice of psychiatrists and no doubt they liked both of us for being such nice and grateful people. Indeed, we were really the perfect psych patients. Yet they wrecked our health, they never noticed how sick they were making me, and my husband, well what did they do for him? Not very much at the end of the day. Perhaps he could have been supported without ruining his physical health and cognitive abilities. Perhaps I could have been supported without ruining my physical health and cognitive abilities. Would that not have been preferable?

Don’t try to tell me that things are better now. It is obvious that they are not. I see all the poly-drugging and the widespread iatrogenic harm, the brain injuries from ECT. I see all the desperate patients on social media who cannot get help. I see the suicides in mental health units. I don’t see hordes of patients talking about the excellent care they have had from the mental health system.

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The evil of psychiatry

I have chosen the word “evil” deliberately. I have chosen it not for dramatic effect or to get attention, I have chosen it because of the reality for so many psych survivors. What psychiatry does to vulnerable people is in fact EVIL. Those of us who are the victims will never have a voice. Psychiatry is the dominant force in this narrative and its victims are just that, victims, people who will always be suppressed and silenced. Psychiatrists see themselves as the saviours of their patients, helping them to achieve a better life, their self-image is incompatible with the reality that they destroy people’s lives, not only their patients but also their patients’ families. They will never understand what they do to people, why should they? If they did, they would never do it, but they will do it and they will continue to do it until the end of time until something or someone stops them.

My introduction to psychiatry came about after being prescribed a benzodiazepine by a neurologist. My health rapidly deteriorated. Neither I nor my family knew that the drug was the cause of this. I then took an overdose. I was in a state of extreme destress, not only because of my rapid decline in health but by the fact that I had just tried to kill myself. It was no cry for help, I intended to bring my life to an end that night, in the bedroom next to my parents’ bedroom. Such was the effect of this drug on me, the decision was made within minutes, there was no rational thought whatsoever. I certainly believed that a bottle of pills should be enough to kill me. Imagine if I had been successful, imagine what my parents would have had to endure. Right from the outset I was viewed by the local GPs as some silly little female only looking for attention.

I was then referred to psychiatry. I attended a Day Hospital where I was expected to sit in a large group of patients and staff talking about my emotions, I was already in a terrible state, depressed and withdrawn and did not want to talk to any group of people. I listened as one psychiatrist told a patient she could throw herself under a bus if she wanted to take her own life. She obliged and ended her life that night by taking an overdose. I sat listening to him in horror, not having the strength to tell him to go to hell. Even at 20 years of age I knew that was no way to speak to any human being who was suicidal.

Whilst attending this Day Hospital I entered into a relationship with another patient and within a year we had decided to get married. We were both diagnosed with “depression” and I assumed we had similar difficulties, however after we started to live together I very soon came to realise that my husband’s difficulties were far more complex than my own. Whilst we were able to support each other, it also meant that we had to deal with our own fragile state as well as the fragile state of the other. We left the Day Hospital and purchased our own flat, both of us managing to be in full-time employment at the time. My condition did not improve, indeed it continued to deteriorate. What else would be expected? I was swallowing the benzos every single day, the drugs which propelled me to attempt to kill myself. My husband continued to work full-time, my ability to work was less predictable.

I then became the patient of a very well respected Professor of Psychiatry, George Ashcroft. He optimistically told my mother that I would recover, as he decided to start prescribing the most awful drugs to me. My mother trusted him, as did I. I assumed that if I endured the terrible effects of these drugs, I might have a chance of recovery. What my mother did not know and what I did not know was that I did not need these drugs, nor did I need to endure their toxic effects. This well respected Professor never thought to consider that I was sick because of my consumption of benzodiazepines, prescribed to me by a neurologist. The first antidepressant he prescribed to me caused fits. I was admitted to a psych ward so that the drugs could be changed and I could be monitored. I remember very clearly being shown into a room by the Professor and he proceeded to interview me in front of approx 20 staff, I can’t remember exactly how many, I had no idea who they were and I had been given no warning this is what I was about to face. I was a depressed and withdrawn young woman yet again faced with an intolerable situation.

During my time in the psych hospital I endured drug switches, poly-drugging and was left in a zombified state, finding it very hard to function. I was then transferred to another psych hospital so that I could attend a rehabilitation centre to try to get back into a work schedule in preparation for returning to paid employment. In a zombified state, I went through with this, attending the centre every day. I then returned home and managed to secure employment, struggling to work every day, in a terrible state of health. It was cruel, so very cruel. Of course every time I could not cope I blamed myself for my inadequacies, when in fact I was a very sick young woman forcing myself to hold down a job to help pay the mortgage and keep a roof over our heads.

I had further in-patient admissions and on one occasion I walked out of the ward, went home and swallowed another bottle of pills, this time it could have been fatal. This suicide attempt was the direct result of the psychiatrist’s attempt to probe into my childhood memories. I suddenly had flashbacks, and started screaming in the ward. Instead of asking me why I was screaming, a meeting was organised to discuss my unacceptable behaviour. After I returned to the ward, having survived this suicide attempt, it was suggested I should be sectioned, I was offered ECT and the psychiatrist actually said I could spend the rest of my life in hospital. By that stage I didn’t care where I stayed, after all I had just tried to end my life. However, I wasn’t sufficiently defeated to agree to ECT and my husband certainly did not agree to my being sectioned.

When this respected Professor could see no improvement in my condition, he decided to pass me onto another psychiatrist who practised psychotherapy. This new psychiatrist did not suggest coming off the drugs but encouraged continued consumption. He proudly announced he hadn’t bothered to read the first volume of my medical notes. If any doctor had ever bothered to read my medical history they would have seen that I had been prescribed a benzodiazepine and within two months I was in a terrible state, physically, cognitively, mentally and that I had tried to kill myself. No doctor ever noticed what had happened. I was just a stupid female who was too close to her mother and too dependent on her. Did they never consider I had grown up in a very rural area? I went to school, came home again and had limited chance to experience the wider world, we did not even have a telephone and there was very little in the way of public transport. Did they not notice that my mother encouraged me to go to University hundreds of miles away from home, or that she then encouraged me to go to London to work? She was certainly not trying to hold me back. Quite the opposite in fact.

This psychiatrist then decided to involve my mother by inviting her to a consultation. I had wanted professional help to protect my mother, I knew she was vulnerable and after I took the overdose I did not want her to be burdened by my state of mind. The end result of this consultation was that my mother blamed herself. That night we found her wandering in the local churchyard in a terrible state, she then took to her bed and didn’t want to get out of it again. The whole episode nearly split up our entire family, I cannot give details here of why that was. I am the only person who knows what happened. My “illness” ruined the last 10 years of her life and it was all completely unnecessary.

Due to the fact that I kept getting worse and could see no end to this situation, I decided I would not have children, I did not want any child of mine to have to endure what I was having to go through. In any case I was too sick to contemplate getting pregnant. I had come to believe that there was something seriously wrong with me, after all I had been persuaded that there must be something wrong with the neurotransmitters in my brain, my personality was flawed and I was a really peculiar human being, and it may even be due to faulty genes. What else was I supposed to think? I was a physical, emotional and psychological wreck trying to function in daily life when in fact I did not have the energy to do so. My cognition had been impaired since starting on benzodiazepines, I was chronically tired, mood was very low and all this was said to be “depression”. When I switched to the newer antidepressants I was relieved of the awful effects of the tricyclics and MAOIs, this was viewed as an improvement in my condition, but all that had happened was the drug burden on me had been lessened, making it a little easier for me to function against the disabling effects of the benzos.

And so what started out as an adverse reaction to a drug, coupled with my own difficulties in making the transition from school to adulthood, became lifelong chronic consumption of toxic drugs, destroying my health. In 2012, a change of GP practice finally resulted in a doctor questioning why I was still consuming benzodiazepines. My attempt to come off them resulted in total catastrophe. Not a single part of my body has been unaffected. I am a physical wreck, old before my time. What is worse is the fact that I spent 40 years of my life in a drugged state not even seeing what I was doing to myself, believed that I suffered from “depression”, had faulty neurotransmitters, likely faulty genes to boot and was a completely inadequate human being who could never function normally in this world. I had to get off these drugs to understand the truth. What I thought was depression was in fact damage to my brain, damage which started the day I was prescribed a benzodiazepine, the decline in my health was so rapid and so marked I fail to understand why no doctor could ever see it. I certainly could not see what these drugs were doing to me, my brain was impaired, my judgement impaired, but surely someone who is trained in the medical field should have known better, just one doctor was all it needed, just one. It is only in the past few years that I have discovered that Prof George Ashcroft discounted the low serotonin theory by 1970, I wish I had known, I wish I had known that I had no need to consume SSRIs, that there was no such thing as a chemical imbalance in my brain, causing me to be depressed.

What I have had to endure has only been a fraction of what many other psych survivors have had to endure. I wasn’t sexually abused as a child, I had really good parents. I have never been raped or a victim of domestic violence or any other crime. In many ways I have had a “normal” life, it could have been a very ordinary life, but a much happier and healthier one had I never sought medical advice in 1975. I have never been sectioned, never locked up, never been forced to do anything. Any whiff of coercion and I would run a mile, I don’t seek medical help to be coerced to do anything. A psych hospital for me was a place where I could come and go as I wished for the most part, going home, to the shops or the bank, attending university lectures and even to work when I was able to hold down a job. I was there mostly for drug monitoring and drug switching, not to be kept a prisoner or to be punished for existing. Nevertheless, my life has been completely ruined, I may still be alive but that is only by chance, if I had had my way I would be dead. I am now retired, it should have been a time of relaxation and enjoyment, instead it has been years of torture and torment. No children or grandchildren to enjoy, no looking back on a life well lived or dreams fulfilled, none of that was possible.

I have had a presence on Twitter since 2014. I set up my account at the height of drug withdrawal, when I was being tortured by the suffering I was forced to endure. I do not campaign because I had an adverse reaction to a drug, I have had adverse reactions to most drugs I have ever had the misfortune to consume, I campaign because of the destruction of my adult life, all of it and I stand with all those whose lives have been similarly destroyed. Many are dead, many left in a far worse state than myself, others will of course have fared better, perhaps they managed to escape from the cult of psychiatry before too much harm was done to them. To those who label me as a Scientologist, anti-psychiatry, anti-meds, anti-science, anti-medicine, anti-doctors, anti-vaxx, you are no better than the psychiatrists who have ruined my life, you are just the same as they are, coming at me with your silly labels because you cannot think of anything more intelligent to say. Have you ever heard of the slogan “See me, not the label”. Perhaps think about that before you write nonsense in your tweets. Also do not come at me with your accusations of “scaremongering”, “pill-shaming”, “shaming”, “stigmatising”, instead look at yourselves and look at what you do to people. When you stop harming people maybe you can have an opinion. I didn’t destroy anyone’s life, I would rather kill myself than do that to another human being. Would you also attack the survivors of child sexual abuse, is that the type of person you are?

My life has as much value as any other human being on this planet. I deserved to have a life, I did not deserve any of this. I may have been a working class female but I took it for granted that I was intelligent and would go to University, I took it for granted I had a future. Why would I not? All it takes is one consultation, one drug and you can kiss good-bye to all of that. Medical doctors are trained to prescribe drugs, they are in fact trained to cause us harm, any doctor who is prescribing drugs and does not know the risks that they pose is a danger to patients. All doctors are a danger to their patients. They rely on a corrupt pharmaceutical industry for their education, how could it be any different.

My ex-husband died in 2016. We divorced after 10 years of marriage. His mental state did not improve at all and indeed worsened. He endured decades of drugging, poly-drugging and ECT. Not long before he died he said that he did not think that the drugs had helped him. He was right, his condition had not improved. His physical health and cognition was very much poorer. Perhaps if his early years had been better understood, perhaps if he had had support as a child it might have been different. He had been a happy, normal little boy until he was pronounced partially deaf at age 7. Thereafter he was bullied and ostracised and grew into a very troubled teenager. His distrust of other people became deeply entrenched and could not be shifted. Thankfully he trusted me enough to marry me and we remained friends until his death. He was a hard working man until he could work no longer. He was honest and decent and would not have hurt anyone by intention. His life was blighted by mental pain and suffering.

When I die, my remains will be interred with my parents, it is what I want. I will be laid to rest alongside the two people, ordinary decent working class people, who did everything possible to give me a good start in life, they would have done anything for me, anything within their power. Nether of them had the chance to know what really happened to me. My mother died at a very sad time in my life. My father thankfully lived for another 25 years and we had many happy times together and I have wonderful memories of him as he progressed through very old age. Nothing that happened to me was their fault, none of it. I didn’t have the chance to build a successful marriage or to have children, grandchildren or even great-grandchildren. My life was spent simply trying to do the essentials of daily life in order to pay bills and survive. It wasn’t a life, it was more of an existence, despite outward appearances. As a friend said to me recently: “You always put on a good show” and he has seen me through the worst of it. Nearly every photograph of me you will see a big smile, hiding the sadness, the struggle, the sickness I endured every minute of every day. I don’t wear that mask any more, I can’t, there comes a point when it is just too much effort. Of course I still smile and laugh when I am with friends and family, why would I not? I enjoy people’s company but behind the smile is a very deep sadness and regret which never goes away. The only time I feel some sense of peace is when I am walking in the park or along the seashore, then I can forget, just for a little while. I don’t believe in life after death, I believe death is the end but in death I will be with the two people who brought me into the world, the two people who did not deserve to see me suffer so much. They too deserved better.

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The massive gulf between those who work in the MH system and the victims of that system

This is the gulf in a nutshell, just a few tweets.

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We must be free to speak

When I was a child the view was that children were not expected to say much, at least not in my experience. At home adults dominated the conversation and at school it was exactly the same. We were not asked for our opinions, we did not discuss our thoughts and emotions, we memorised and we regurgitated and came out with top grades in our exams and went on to University as was expected.

I had just started a University degree when I was first introduced to benzodiazepines. Since then, I have spent most of my adult life in a drugged state, drugged by benzodiazepines and antidepressants. Before anyone objects to the word “drugged”. that has been my lived experience. I consumed prescribed drugs which made me like a zombie. Before anyone objects to the word “drugs”, that is what they are and used to be the normal language used by the general public. I experienced a terrible ordeal coming off these drugs which I can only describe as “hell and torture”. Before anyone objects to the words “hell and torture”, I suggest you think of those patients who are terminally ill, seeking assisted dying, because they do not want to endure the hell and torture they are likely to face without it.

I joined online support groups and started to campaign about the horrendous damage caused by two classes of drugs, benzodiazepines and antidepressants. Almost immediately there was a backlash against us as professionals and patients on meds accused us of pill-shaming, scaremongering, stigmatising mental health drugs and mental illness. Really? Talking of widespread iatrogenic harm is really not welcome by those professionals who prescribe these drugs and by some people who consume them.

My reaction to these accusations has been to generally avoid people on meds, as it is not worth getting into these arguments. Not once did I ever object to the widespread publicity, TV documentaries about benzodiazepines, even though I was consuming them, never did I think that this was harmful, it was a public service warning patients and public alike that these drugs could be so terribly destructive and harmful to health.

I need to be free to speak without these false accusations being levelled against me. Not content with those accusations, I have also been nefariously described as a Scientologist, anti-meds, anti-psychiatry, anti-science, anti-doctors, anti-medicine, some even throw in anti-vaccines for good measure. Are all these people crazy? Where do they get their wild imaginations? Very quickly I came to understand that these people are not on social media for the good of our health but quite the opposite. I started to feel like a psych patient with a long list of psych diagnoses who in fact was a perfectly normal person who had simply had the misfortune to encounter psychiatry. What is a psych diagnosis? The opinion of a psychiatrist? Perhaps if just one of my psychiatrists had considered the underlying cause of all my symptoms, it would have helped me enormously. After all that was why I consulted a doctor in the first place, to find out what was wrong and why!

Anyone who is critical of psych drugs will be attacked. Here is an example from today.

Twitter is also a place where we cannot speak freely, it has become so much worse since the pandemic started, where we cannot talk openly about vaccines and vaccine injuries.

And so I look back on my life. Where is it possible to speak freely? Wherever I go there are those who wish me to wear a gag on my mouth, just like the teachers at school, listen to us and do not speak back, you are but a child and what you think and feel really doesn’t matter because we the adults know best.

I wasn’t even allowed to speak in my natural language when I went to school, we had to speak and write in English, not in the Scots Doric. I learned so much about British history but far less about Scottish history. I did not grow up learning to view myself as Scottish but as British. I no longer think of myself as British but as Scottish, my ancestry goes back hundreds of years in the place where I was born. I no longer think of myself as a psych patient for I am free from all that claptrap and drugging into oblivion, they may have left me with brain damage and ruined my health but I am still free to be me and I WILL SPEAK because my voice is important and those who wish to silence me are the people who are keen to see others lose their lives or their health due to prescribed drugs of dependence, they are against informed consent, patient safety and better healthcare.

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Are antidepressants a crime against humanity?

For decades the general public (patients) have been bombarded with messages about chemical imbalances in the brain and in particular low serotonin being the cause of depression. I certainly was bombarded with these messages. The psychiatrist who first prescribed tricyclic antidepressants to me was Prof George Ashcroft. Prof Ashcroft had discounted the low serotonin theory by 1970 as he could find no evidence to support it. I did not know this until recently. As I could not tolerate most of the drugs prescribed to me, I was eventually given an SSRI, Prozac, another terrible drug which I could not tolerate. At every single point in time I was led to believe that these drugs would somehow help my condition. Yet I had been on a benzodiazepine since 1975, a drug which mad made me extremely unwell and very quickly. None of my doctors noticed this. I was already trapped on that drug by the time antidepressants were offered to me. Psychiatrists were now persuading me that I needed to be trapped not just on one class of drug but on two classes of drugs. At no point was there informed consent. I am just one person, with one story. There are millions like me, yet this is viewed as being just a normal part of routine medical practice, it does not even raise an eyebrow among doctors. It never raised an eyebrow in any of the doctors I consulted with, they believed that drug dependence and long term prescribing was good for my health!

Millions have been deceived into consuming SSRI antidepressants. Millions no doubt have been harmed.

This is normal, routine, every day medical practice. I call it a crime against humanity! The suffering caused by these drugs is horrific, just as the suffering caused by benzodiazepines is also horrific. They call it evidenced based medicine.

For me this isn’t about “mental health” or “mental health” drugs. I was not prescribed a benzo for my “mental health”. It was prescribed by a neurologist. It is about drugs being brought to market without warnings of risks, false marketing, ignorant doctors educated by drug companies, failure to listen to patients as they report harm, continued high prescribing rates despite all the risks being known, the lack of informed consent. I can guarantee as I write antidepressant prescribing rates will be rising, this is the same pattern as we saw with benzos, the prescribing rates continued to rise despite all the potential harms being known by doctors. How many patients will actually be informed of the risks?

Prescribers are very willing to prescribe, much less willing to outline the serious risks and most certainly will not inform of the permanent damage caused by these drugs about which they can do absolutely nothing. PSSD is one example. These drugs can permanently alter the functioning of the brain and body in many different ways, with current medical knowledge medical doctors have no way of helping those who are permanently altered.

This article seems pertinent to add here.

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Finding people who listen

It is very hard to find people who listen, who truly listen. The problem is that most people want to give an opinion rather than listening. That is what happens in the mental health system. There is always someone with an opinion, often a negative one, it may be the words you use, the clothes you wear, the food you eat, whatever it happens to be there will be someone working in the mental health system with a negative opinion. I used to wonder why they were working there but of course they would never stop to think they were causing harm. It is just part of the job, negatively judging the people they are paid to care for. It would have made them feel better about themselves. True friends are a godsend, friends who can listen, knowing it is not their place to offer an opinion. They know they can’t. So they just listen. Wow, what a difference they can make. They don’t need any training, they are just wise people. They also do not get paid to negatively judge those who confide in them.

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Does the behaviour of mental health professionals on Twitter matter?

Apparently opinion is divided. For some, mental health professionals are entitled to behave as they choose on social media, it doesn’t matter if they cause harm to others, it is their spare time and there is no obligation to behave as a professional, let alone a decent human being.

I have a different view. I would like any mental health professional involved in my care to be a decent human being. If they think that being nasty, vile and vindictive is the way to be then I would not be interested in any opinion about my mental health.

Some take great pleasure in labelling those of us who have rejected the labels of psychiatric diagnoses. Those who do this simply like labels, they like to categorise people and they like to put them into boxes. Obviously those of us who campaign about the harms from prescribed drugs of dependence, including psych drugs, are anti-harm and pro-patient safety. However the usual labels given to us are done with an intent to cause harm e.g. anti-meds, anti-psychiatry etc. I say this because the labels are used in a disparaging manner which is totally contrary to our goals of improved patient safety and reduced harm. When mental health professionals choose to cause harm, they are not the type of people who should work with the vulnerable and distressed.

Psychiatric diagnostic labels and psychiatric dugs are often used as a means to silence us, it means we cannot express our painful emotions and cannot access people who are willing to listen to us and sit with us in our pain. Labels are okay for those who want to be labelled, who identify with said labels, but trying to impose them on others is yet another attempt to try to exert control over people who do not wish to be subservient to those who wish to control.

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